MDS-Register
The clinical picture of myelodysplastic syndromes is very complex in its development and equally individual in its treatment. The MDS Registry has been in existence since the 1970s to document the various constellations of disease development and progression in the context of a specific treatment or therapy. Professor Ulrich Germing from the University Hospital Düsseldorf is responsible for the scientific management of the registry.
The current MDS Registry project has now included an additional 1,200 patients, bringing the total number of patient records in the registry to more than 10,000. These data serve as a basis for obtaining scientific insights and deriving resulting guidelines for the treatment of affected individuals. It also serves as a source for a number of scientific publications and evaluations.